Resilient Raymond

Resilient Raymond

Micro-Preemie Masters Movement as Inpatient and Outpatient
Raymond has got some serious moves. The 14-month-old can roll over, push himself up to a sitting position and even use both hands to play with toys. Some pretty impressive skills considering what he had to overcome. In January 2018, an unexpected pre-term delivery brought him into the world at just...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Micro Preemie
  • Congenital heart disease
  • PDA
  • Bronchopulmonary Dysplasia/BPD
  • Chronic Lung Disease
  • SVT
  • hypothyroidism
Dancing David

Dancing David

Conquering Cerebral Palsy with Physiatry, Physical Therapy and K-Pop
“He’s a firecracker that walks to the beat of his own drum.” Akua Genfi speaks with pride about her confident and charismatic nine-year-old son, David, who is always excited to meet new people, say “hello” and spark up a conversation. For almost half his young life,...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Cerebral Palsy (CP); obstructive congenital hydrocephalus; endoscopic third ventriculostomy; spasticity; botox injections; dorsal rhizotomy;

GOT Star's Medical Revelation Empowers Former Patient

I lived a normal, healthy and active life for fourteen years until I suffered a stroke caused by an unexpected brain hemorrhage. I underwent life-saving surgery, but became partially paralyzed to the right side of my body. This was my lowest point, but I didn't know just how bad it was. In the...
Talented Trejah

Talented Trejah

Dancer Dazzles with Emotional Encore After Beating Brain Tumors, Stroke
“Since I was little, dancing was everything to me.” The spotlight shined brightly on Trejah as a young, talented performer. Before even becoming a teenager, she had taken the stage numerous times in ballet and dance, even joining the famed Alvin Ailey American Dance Theater at Lincoln...

Tags:

  • Acquired Brain Injury
  • Juvenile Pilocytic Astrocytoma; seizure disorder; stroke; paralysis; cognitive impairments; brain tumor
Tara's Triumph

Tara's Triumph

Teen's Fierce Determination for Independence Drives Assistive Technology Training
The will to fight was instilled in Tara ever since day one. Born a premature triplet at 26-weeks and weighing just under two-pounds, she required resuscitation in the delivery room and was put on a life-sustaining ventilator for weeks while undergoing numerous surgeries and medical procedures to...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Extreme Prematurity
  • Cerebral Palsy (CP)
  • spastic quadriplegia
Brave Bentley

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community
Bentley is more than meets the eye. He’s more than the power wheelchair that keeps him moving. He’s more than the ventilator that keeps him alive. He’s more than the assistive technology that helps him communicate. “He is the bravest kid in the world and an inspiration for...

Tags:

  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Assistive Technology
  • Specialized Feeding
  • Complex Post-Surgical Rehabilitation
  • nemaline myopathy
  • Scoliosis
  • Chronic Respiratory Failure
A Different Daniel

A Different Daniel

From Failure to Thrive to Specialized Feeding Program Pride
Slow and steady wins the race. A mantra that Blythedale Children’s Hospital patient, Daniel, his family and medical/clinical teams have lived by for the past few years. Since his birth four years ago, eating has been an obstacle for Daniel. He was initially breastfed, but had difficulty...

Tags:

  • Eosinophilic Esophagitis/EoE
  • Failure to Thrive/FTT
  • Food Allergies
  • Asthma
  • Autism
  • Feeding Delays
  • Speech Delays
Rocky's Big Game

Rocky's Big Game

Walking into a major league ballpark is often an impressive sight to see, but for one Blythedale Children’s Hospital patient and his family, attending a recent baseball game held even more meaning. Nine-year-old Rocky, a previously healthy and active child, suffered a stroke in July. He was...

Tags:

  • Acquired Brain Injury
  • Neuromuscular Disorders
  • Stroke
Omouri's Odyssey

Omouri's Odyssey

Assistive Technology Aids Tot with Spinal Muscular Atrophy
An infectious smile and big, brown eyes. These are just a few things you notice about Omouri when you first meet him. The two-and-a-half-year-old is unable to talk, but can speak volumes with just a look or a grin. “He’s full of energy and wants to express himself, but is unable to do...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Spinal Muscular Atrophy

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