Malka on the Mend

LVAD Dependent, Pre-Transplant Patient Returns After Cardiac Surgery
“I’ve never had a child, who’s had a major organ transplant, come back so quickly.” Dr. Mary Didie, Unit Chief of the Day Hospital Program at Blythedale Children’s Hospital, proudly uttered those words upon the return of nine-year-old Malka in March 2018, less than...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • LVAD
  • Heart Transplant
  • Stroke
A Journey of Hope

A Journey of Hope

Follow the extraordinary journeys of a few of Blythedale's smallest and most fragile infants, as their families prepare to bring them home... for the very first time.
"No family ever expects to be in this situation. You just don't think it will happen to you," said Jim McVeigh, Giavanna's father...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Congenital heart disease
  • Micro Preemie
  • Extreme Prematurity
  • Acquired Brain Injury

Wondrous Wadeem

International Heart Transplant Patient's Journey Spans Continents for Cardiac & Pulmonary Care
How far would you go for the best medical care for your child? For five-year-old Wadeem and her family, the answer was half a world away. Diagnosed with complex congenital heart disease at birth, Wadeem underwent multiple cardiac reparative surgeries in her home country of Saudi Arabia and, later,...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Congenital heart disease
  • Chronic Lung Disease

Amazing Abby Overcomes Cardiac and Pulmonary Challenges

Nearly One, Infant Heads Home for the First Time
Abby has always amazed her parents and medical teams. The full-term baby was born in April 2017 with a prenatal diagnosis of an atrioventricular canal (AVC) defect and critical coarctation, both congenital heart defects. And within the span of only nine days, Abby underwent two reparative heart...

Thriving Theo

Driven Teen Excels in Recovery from Stroke
For the first fourteen years of his life, Theo was healthy and active. He spent time with his family, hung out with friends, played sports at summer camp and excelled in school. But in November 2016, everything changed. While at his home in Manhattan, the teen unexpectedly developed severe...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Stroke
  • Acquired Brain Injury

Raelynn's Road to Recovery

Bubble CPAP Offers Non-Invasive Ventilation Treatment for Preemie
Four-month-old Raelynn – born at just 24-weeks gestation - is heading home for the first time. It’s been a complicated journey for first-time mom, Raveen, but one that was made easier thanks to the support she and Raelynn received at Blythedale Children’s Hospital. During her 117-...

Tags:

  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
  • PDA
  • Extreme Prematurity

Cara's Story

My Blythedale Experience
My name is Cara Macdonald, and I am a former patient at Blythedale. I believe it was Dr. Rackley, my neuropsychologist, who asked me, as part of a series of simple questions to test my awareness, who the president of the United States was. I still think back today about how shocked I was, even in...

Tags:

  • Acquired Brain Injury
  • Complex Post-Surgical Rehabilitation
  • undefined

Hopeful Karla & Her Son

My Blythedale Experience
Blythedale is a magical place with very special people working in every department. My family’s experience from admission to discharge one we will treasure forever….it was priceless. We will always cherish our memories in the month of October 2013. My autistic son has late stage Lyme...

Tags:

  • Complex Post-Surgical Rehabilitation

Bringing Demi Home

My Blythedale Experience
Our daughter Demi was diagnosed with Juvenile Pilocytic Astrocytoma, a rare brain tumor found in children. Once diagnosed in the ER, Demi had to undergo an emergency surgery to have a ventricular drain placed into her skull in order to drain the excess cerebrospinal fluid that accumulated due to...

Tags:

  • Acquired Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Astrocytoma

Malka on the Move

When eight-year-old Malka arrived at Blythedale last October, she was a trailblazer in her own right. Malka was born with dilated cardiomyopathy, a condition in which the heart's ability to pump blood is decreased because the heart's left ventricle is enlarged and weakened. Despite her...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • LVAD

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