River, Ana, Diana and Bear at home

River's Road Home

Respiratory Therapy and Parent Training Pave the Path from Hospital to Home.
Ana Rivera found out she was pregnant on Halloween in 2020. She and her partner, Diana Vasquez, started preparing for the next chapter in their lives and their new arrival. However, on April 8, 2021, at just 26 weeks’ gestation, River Omari Rivera was born weighing a mere 2 lbs., 2 oz. and...

Tags:

  • Pulmonary Rehabilitation
  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
Mother looking at child

Maria's Village

Care at The Steven and Alexandra Cohen Pediatric Long Term Care Pavilion Creates a Happy Ending.
Maria is a six-year-old girl whose family has long awaited her arrival home and it's taken a village to get her there. Maria was born with arthrogryposis, a rare and complex congenital condition that affects the joints in her upper and lower limbs causing stiffness and limiting her range of...

Tags:

  • Complex Chronic Conditions
Max in hallway

Stepping Stones Home

Max's Story
Meet Max, an aspiring content creator who - at age 12 - is taking on the world while recovering from congenital heart disease and an hypoxic brain injury. Max attends the Robert Stone Day Hospital at Blythedale Children’s Hospital which offers a specialized program for children who are able...

Tags:

  • Acquired Brain Injury
  • Cardiac Rehabilitation
  • hypoxic brain injury
video image

The Magic of Health Home

When asked about who Noah is, his mom, Katy, replied, “Noah is an amazing little boy. Well, I shouldn’t say little boy anymore because he’s 15, but to me he’s always going to be my little boy.” Noah was born prematurely at just 24-weeks’ gestation and was...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Cerebral Palsy (CP)
three children

Resiliency Through Recovery

"You never wake up and imagine that you, or your child, would have to endure this kind of madness."
Hear the stories of three children who were impacted by gun violence and treated at Blythedale Children's Hospital.

Tags:

  • Acquired Brain Injury
  • Traumatic Brain Injury/TBI
adela as a child

Adela Peskorz: Life Beyond Blythedale

60 years later, the #blythedaledifference lives on for this former patient
Adela Peskorz, now in her sixties, was born with a congenital dislocated hip and was admitted to Blythedale Children’s Hospital shortly after she was born . She spent seven years, from 1955 through1962, as an inpatient. Adela's fondest memories include relaxing on the lawn at Blythedale...
basketball video

Charlie's Comeback

Comprehensive rehabilitation at Blythedale Children’s Hospital gets Charlie back in the game.
On Valentine’s Day in 2020, 14-year-old Charlie was playing basketball with his friends when he suddenly felt tingling in his hands and fingers. He tried to call his parents, but his hands went numb, and he dropped his phone. “At that point I was completely paralyzed,” recalled...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Transverse Myelitis
Angela with Guitar

Angela's Advice

A Complex Recovery Eased by Child Life, Therapeutic Recreation and Music
Eleven-year-old Angela was diagnosed with neurofibromatosis type 2, a condition that causes non-cancerous tumors to form in the brain, spinal cord, and nerves. She has undergone numerous complicated surgeries, followed by multiple rounds of chemotherapy to prevent the return of tumors that were...

Tags:

  • Complex Post-Surgical Rehabilitation
  • neurofibromatosis
mother and baby cuddling

With Feeding Tube and Innovative Parent Education Program, AJ Thrives

For More than 60 Medically Fragile Infants and Children at Blythedale, Feeding Tubes Provide Essential, Life-Saving Nutrition
Eight-month-old AJ was born with both Down syndrome and Tetralogy of Fallot, a rare condition caused by a combination of four heart defects. Shortly after his birth, AJ required major surgery to improve blood flow to his heart. His complex condition necessitated both a tracheostomy (a surgically...

Tags:

  • Specialized Feeding
  • Post Acute Neonatal Care
  • Downs Syndrome
Joshua

Creating Ability Through Assistive Technology

Joshua's Story
Eighteen-year-old Joshua has Chronic inflammatory demyelinating polyneuropathy (CIDP), a rare neurological disorder that causes progressive weakness and impaired sensory function in the legs and arms. For Joshua, the disease has impacted his movement and coordination, and led to weakness in his...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Chronic Inflammatory Demyelinating Polyneuropathy

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