Omouri's Odyssey

Assistive Technology Aids Tot with Spinal Muscular Atrophy
An infectious smile and big, brown eyes. These are just a few things you notice about Omouri when you first meet him. The two-and-a-half-year-old is unable to talk, but can speak volumes with just a look or a grin. “He’s full of energy and wants to express himself, but is unable to do...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Spinal Muscular Atrophy

Independent Amanda

Teen Triumphs at Blythedale with Technology, Tenderness and Time
Graduation is a time to reflect on past achievements while looking ahead to new beginnings. For one special 12th grader at the Mt. Pleasant-Blythedale School, located on the grounds of Blythedale Children’s Hospital, her future is paved with potential. “I will be moving to a new house...

Tags:

  • Assistive Technology
  • Complex Chronic Conditions
  • Otopalatodigital Spectrum Disorder
  • Cochlear Implant
  • Scoliosis
  • Diabetes
  • Blind
  • Deaf

Daniella's New Dawn

Teen with Acquired Brain Injury Defies Diagnosis
Can a nosebleed save a life? For Daniella and her family, it did. Born full term and leading a healthy, active life for her first eleven years, the young girl rarely needed a doctor. In fifth grade, Daniella began developing frequent nose bleeds, fatigue and dizziness that gradually worsened until...

Tags:

  • Acquired Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Specialized Feeding
  • Acquired Brain Injury

Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil
From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)

Malka on the Mend

LVAD Dependent, Pre-Transplant Patient Returns After Cardiac Surgery
“I’ve never had a child, who’s had a major organ transplant, come back so quickly.” Dr. Mary Didie, Unit Chief of the Day Hospital Program at Blythedale Children’s Hospital, proudly uttered those words upon the return of nine-year-old Malka in March 2018, less than...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • LVAD
  • Heart Transplant
  • Stroke
A Journey of Hope

A Journey of Hope

Follow the extraordinary journeys of a few of Blythedale's smallest and most fragile infants, as their families prepare to bring them home... for the very first time.
"No family ever expects to be in this situation. You just don't think it will happen to you," said Jim McVeigh, Giavanna's father...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Congenital heart disease
  • Micro Preemie
  • Extreme Prematurity
  • Acquired Brain Injury

Wondrous Wadeem

International Heart Transplant Patient's Journey Spans Continents for Cardiac & Pulmonary Care
How far would you go for the best medical care for your child? For five-year-old Wadeem and her family, the answer was half a world away. Diagnosed with complex congenital heart disease at birth, Wadeem underwent multiple cardiac reparative surgeries in her home country of Saudi Arabia and, later,...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Congenital heart disease
  • Chronic Lung Disease

Amazing Abby Overcomes Cardiac and Pulmonary Challenges

Nearly One, Infant Heads Home for the First Time
Abby has always amazed her parents and medical teams. The full-term baby was born in April 2017 with a prenatal diagnosis of an atrioventricular canal (AVC) defect and critical coarctation, both congenital heart defects. And within the span of only nine days, Abby underwent two reparative heart...

Thriving Theo

Driven Teen Excels in Recovery from Stroke
For the first fourteen years of his life, Theo was healthy and active. He spent time with his family, hung out with friends, played sports at summer camp and excelled in school. But in November 2016, everything changed. While at his home in Manhattan, the teen unexpectedly developed severe...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Stroke
  • Acquired Brain Injury

Raelynn's Road to Recovery

Bubble CPAP Offers Non-Invasive Ventilation Treatment for Preemie
Four-month-old Raelynn – born at just 24-weeks gestation - is heading home for the first time. It’s been a complicated journey for first-time mom, Raveen, but one that was made easier thanks to the support she and Raelynn received at Blythedale Children’s Hospital. During her 117-...

Tags:

  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
  • PDA
  • Extreme Prematurity

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