Joyful Jackson

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters
Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia/BPD
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • hydrocephalus
Making Music Matter

Making Music Matter

Therapy Program Promotes Hope, Self-Expression & Socialization
“Every human being has an inherent musical ability. We all have a heartbeat and a heartbeat is a rhythm.” It’s this sense of hope at Blythedale Children’s Hospital that has kept the beat going strong for the music therapy program . But, what exactly is music therapy? It...

Tags:

  • Acquired Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Post Acute Neonatal Care
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Traumatic Brain Injury/TBI
  • Cerebral Palsy (CP)
  • Acquired Brain Injury
Xiomara

In the Blink of an Eye

Battling Back After Brain Injury
"In the Blink of an Eye" is the inspiring story of two children at Blythedale Children's Hospital and their complex road to recovery following devastating brain injuries. Watch Xiomara and Easton as they navigate an unexpected future with the help of their medical team, family and...

Tags:

  • Acquired Brain Injury
  • Traumatic Brain Injury/TBI
Navigating Nathaniel's Needs

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education
Nathaniel is like any other eight-year-old. He loves to watch cartoons, joke around and play on his iPad. The only difference is that Nathaniel not only uses this high-tech device for fun, but also to communicate and explore his world. When Nathaniel was born, his doting parents brought him home to...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Cerebral Palsy (CP)
  • spastic quadriplegia
  • hypotonia
  • Seizure Disorders
  • extreme spasticity
Exuberant Emmy

Exuberant Emmy

Former Preemie Beats Guillain-Barre Syndrome with Therapies & Dance to Give Back
Six-year-old Emmy is a happy, vibrant little girl who easily sports a smile while breaking out any number of dance moves, like the “Floss” or “Dab”. A remarkable achievement for a budding performer who made her debut six weeks earlier then expected. “Emmy and her twin...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Guillan-Barre/AIDP
  • pain management
  • preemie
A Doll Like Mimi

A Doll Like Mimi

Young Amputee Receives Cross Country Gift of Hope
Seven-year-old Mimi, a Day Hospital patient at Blythedale Children’s Hospital, was surprised with a special birthday present from halfway across the country earlier this month. Mimi received “ A Doll Like Me ” (she now lovingly calls “Precious”), donated by nine-year-...

Tags:

  • Complex Wound and Burn Management
  • Complex Post-Surgical Rehabilitation
  • multi-organ failure
  • septic shock
  • necrotizing fasciitis
  • amputation
Big Academic, Rehabilitative Dreams Ahead

Big Academic, Rehabilitative Dreams Ahead

Mt. Pleasant Blythedale School Holds Moving Up Ceremonies
“We want what every other kid wants, each and every day; to go to school, learn, study, make choices, make mistakes and then move on to the next grade.” Powerful words of inclusion from Zoriah, an 11th grader at Mt. Pleasant Blythedale School , during the middle/high school Moving Up...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Blind
  • Chromosomal Abnormalities
Resilient Raymond

Resilient Raymond

Micro-Preemie Masters Movement as Inpatient and Outpatient
Raymond has got some serious moves. The 14-month-old can roll over, push himself up to a sitting position and even use both hands to play with toys. Some pretty impressive skills considering what he had to overcome. In January 2018, an unexpected pre-term delivery brought him into the world at just...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Micro Preemie
  • Congenital heart disease
  • PDA
  • Bronchopulmonary Dysplasia/BPD
  • Chronic Lung Disease
  • SVT
  • hypothyroidism
Dancing David

Dancing David

Conquering Cerebral Palsy with Physiatry, Physical Therapy and K-Pop
“He’s a firecracker that walks to the beat of his own drum.” Akua Genfi speaks with pride about her confident and charismatic nine-year-old son, David, who is always excited to meet new people, say “hello” and spark up a conversation. For almost half his young life,...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Cerebral Palsy (CP); obstructive congenital hydrocephalus; endoscopic third ventriculostomy; spasticity; botox injections; dorsal rhizotomy;

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