basketball video

Charlie's Comeback

Comprehensive rehabilitation at Blythedale Children’s Hospital gets Charlie back in the game.
On Valentine’s Day in 2020, 14-year-old Charlie was playing basketball with his friends when he suddenly felt tingling in his hands and fingers. He tried to call his parents, but his hands went numb, and he dropped his phone. “At that point I was completely paralyzed,” recalled...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Transverse Myelitis
Angela with Guitar

Angela's Advice

A Complex Recovery Eased by Child Life, Therapeutic Recreation and Music
Eleven-year-old Angela was diagnosed with neurofibromatosis type 2, a condition that causes non-cancerous tumors to form in the brain, spinal cord, and nerves. She has undergone numerous complicated surgeries, followed by multiple rounds of chemotherapy to prevent the return of tumors that were...

Tags:

  • Complex Post-Surgical Rehabilitation
  • neurofibromatosis
mother and baby cuddling

With Feeding Tube and Innovative Parent Education Program, AJ Thrives

For More than 60 Medically Fragile Infants and Children at Blythedale, Feeding Tubes Provide Essential, Life-Saving Nutrition
Eight-month-old AJ was born with both Down syndrome and Tetralogy of Fallot, a rare condition caused by a combination of four heart defects. Shortly after his birth, AJ required major surgery to improve blood flow to his heart. His complex condition necessitated both a tracheostomy (a surgically...

Tags:

  • Specialized Feeding
  • Post Acute Neonatal Care
  • Downs Syndrome
Joshua

Creating Ability Through Assistive Technology

Joshua's Story
Eighteen-year-old Joshua has Chronic inflammatory demyelinating polyneuropathy (CIDP), a rare neurological disorder that causes progressive weakness and impaired sensory function in the legs and arms. For Joshua, the disease has impacted his movement and coordination, and led to weakness in his...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Chronic Inflammatory Demyelinating Polyneuropathy
Cody and his speech and physical therapists

Cody's Christmas

Cody made his way home just in time for the holidays and for his family's first Christmas as a family of five.
Cody and his sisters, Mackenzie and Abigail, were born prematurely at 27 weeks at Westchester Medical Center. Cody was in distress as a result of intrauterine growth restriction (IUGR) and was born with chronic lung disease typical of premature birth and required CPAP ventilation. He weighed a mere...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Intra Uterine Growth Restriction/IUGR
Leo on the go

Leo's Lasting Impression

Through the dedication of his parents, the staff at Blythedale, and the fight within Leo, he made it home, but not before leaving a lasting impression on all who met him.
Leo was admitted to Blythedale when he was 18-months old after being born with giant omphalocele, a rare birth defect in which the internal organs develop in a sack outside the abdominal wall. Leo required complex medical care for his complicated condition and intensive physical, occupational,...

Tags:

  • Complex Chronic Conditions
  • Assistive Technology
  • Giant Omphalocele
The Blythedale Four

The Blythedale Four

Proving Preemie Power Prevails
Despite their differences, four former preemies share a remarkable common bond at Blythedale Children's Hospital. Meet "The Blythedale Four" and learn about the threads that tie their lives together at New York's only post acute neonatal care rehabilitation center.

Tags:

  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
  • Chronic Lung Disease
  • Extreme Prematurity

Knowledgeable Naphtaly

Health Home Helps Teach Patient Transitions, Responsibility
Naphtaly knows Blythedale. His lengthy and complex medical journey led him to Blythedale over the course of 12 years as an inpatient, a Day Hospital patient, an outpatient, and most recently, an enrollee in the Hospital’s Health Home Care Management Program . Nineteen-year-old Naphtaly, with...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • centronuclear myopathy
  • neuromuscular scoliosis
Ada's Adventure

Ada's Adventure

Surviving Twin Preemie Weaned From Ventilator Dependency, Goes Home for First Time
As paramedics secured Ada in her car seat atop an ambulance stretcher, her mom, Laurena, stood inside their room at Blythedale Children’s Hospital and reviewed her checklist: 1) Ada’s oxygen levels 2) Ada’s tubing 3) Ada’s seatbelt 4) Ada’s “Discharge Day”...

Tags:

  • Post Acute Neonatal Care
  • Chronic Lung Disease
  • Bronchopulmonary Dysplasia/BPD
  • PDA
Kirk's Connection

Kirk's Connection

Interpersonal & Interdisciplinary Relationships Help Infant Recover From Near Drowning Brain Injury
First-birthday memories are usually filled with family, friends, balloons and big pieces of cake. That was not the case for Kirk and his family. Instead, there were chest compressions, mouth-to-mouth resuscitation and a frantic drive to the emergency room. In August 2020, the joy-filled, healthy...

Tags:

  • Acquired Brain Injury
  • Neuromuscular Disorders
  • Specialized Feeding
  • Acquired Brain Injury; storming

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