Neuromuscular Disorders

Blythedale is widely recognized as a leader in treating children with rare conditions, spinal cord injury, neuromuscular disorders including muscular dystrophy and other myopathies, neuropathies, motor neuron diseases and neuromuscular junction disorders as well as complex genetic syndromes.

Why Blythedale...

Widely recognized as a national leader in treating children with rare conditions, Blythedale is a center of clinical excellence, innovation and compassionate care.

  • Inpatient
  • Day Hospital
  • Long Term Care

The goal of our Neuromuscular Disorders program is to help children maximize their functional abilities through comprehensive medical care and rehabilitation, utilizing state-of-the-art technology, environmental modifications and adaptive equipment.

Following an intake evaluation, the child’s clinical team will work collaboratively with the family to identify developmentally important goals to improve mobility, foster independence in daily activities and self-care, and address the highly specific medical needs of children with rare and complex conditions. 

Coordinated discharge planning provides families with detailed information regarding follow-up care, equipment needs, and support services to help our young patients return to their families, schools and communities.

NIH-Funded Hemiplegia Research

Neuromuscular Disorders Team

Our interdisciplinary team includes full-time board certified pediatric physiatrists and neurologists, as well as distinguished experts in neuropsychology, physiatry, pediatrics, orthopedics and other medical specialties. Blythedale also has the largest and most experienced, hospital-based pediatric therapy department in New York State.

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education

Nathaniel was diagnosed with cerebral palsy and other medical complications that left him with physical limitations and non-verbal. To unlock his world, assistive technology was introduced to empower exploration and education. Learn how Blythedale Children’s Hospital helped bring fun, function, self-expression and endless opportunities to Nathaniel. 

Tara's Triumph

Teen's Fierce Determination for Independence Drives Assistive Technology Training

Tara has cerebral palsy, but wants what any other teen wants... to spend time with friends and family, go to prom and graduate high school. With help from Blythedale's innovative Assistive Technology program, her dreams are becoming a reality. Learn how this former preemie triplet is gaining her independence and mobility, but on her own terms. 

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community

Bentley is more than his power wheelchair, life-sustaining ventilator and assistive technology devices. Lovingly referred to as the "Mayor of Blythedale", Bentley is a trailblazing patient. Learn how Bentley and his mom overcame his progressive neuromuscular disorder and thrived, both during his treatment at Blythedale Children's Hospital and beyond.