Blythedale is widely recognized as a leader in treating children with rare conditions, spinal cord injury, neuromuscular disorders including muscular dystrophy and other myopathies, neuropathies, motor neuron diseases and neuromuscular junction disorders as well as complex genetic syndromes.
The goal of our Neuromuscular Disorders program is to help children maximize their functional abilities through comprehensive medical care and rehabilitation, utilizing state-of-the-art technology, environmental modifications and adaptive equipment.
Following an intake evaluation, the child’s clinical team will work collaboratively with the family to identify developmentally important goals to improve mobility, foster independence in daily activities and self-care, and address the highly specific medical needs of children with rare and complex conditions.
Coordinated discharge planning provides families with detailed information regarding follow-up care, equipment needs, and support services to help our young patients return to their families, schools and communities.
Neuromuscular Disorders Team
Our interdisciplinary team includes full-time board certified pediatric physiatrists and neurologists, as well as distinguished experts in neuropsychology, physiatry, pediatrics, orthopedics and other medical specialties. Blythedale also has the largest and most experienced, hospital-based pediatric therapy department in New York State.
Navigating Nathaniel's Needs
Nathaniel was diagnosed with cerebral palsy and other medical complications that left him with physical limitations and non-verbal. To unlock his world, assistive technology was introduced to empower exploration and education. Learn how Blythedale Children’s Hospital helped bring fun, function, self-expression and endless opportunities to Nathaniel.
Cerebral palsy didn't stop David from doing what he loves. With the help of #TeamBlythedale, his family and music by BTS, this "firecracker" was able to overcome his medical challenges and stand up so he could get down. Learn how David found his groove.
Tara has cerebral palsy, but wants what any other teen wants... to spend time with friends and family, go to prom and graduate high school. With help from Blythedale's innovative Assistive Technology program, her dreams are becoming a reality. Learn how this former preemie triplet is gaining her independence and mobility, but on her own terms.
Bentley is more than his power wheelchair, life-sustaining ventilator and assistive technology devices. Lovingly referred to as the "Mayor of Blythedale", Bentley is a trailblazing patient. Learn how Bentley and his mom overcame his progressive neuromuscular disorder and thrived, both during his treatment at Blythedale Children's Hospital and beyond.
Born seemingly healthy then diagnosed with spinal muscular atrophy, a progressive disease that weakens the body while leaving the mind intact, Blythedale Children's Hospital utilizes its state-of-the-art assistive technology program to help transform Omouri's small movements into big results.