Navigating Nathaniel's Needs

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education
Nathaniel is like any other eight-year-old. He loves to watch cartoons, joke around and play on his iPad. The only difference is that Nathaniel not only uses this high-tech device for fun, but also to communicate and explore his world. When Nathaniel was born, his doting parents brought him home to...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Cerebral Palsy (CP)
  • spastic quadriplegia
  • hypotonia
  • Seizure Disorders
  • extreme spasticity
Big Academic, Rehabilitative Dreams Ahead

Big Academic, Rehabilitative Dreams Ahead

Mt. Pleasant Blythedale School Holds Moving Up Ceremonies
“We want what every other kid wants, each and every day; to go to school, learn, study, make choices, make mistakes and then move on to the next grade.” Powerful words of inclusion from Zoriah, an 11th grader at Mt. Pleasant Blythedale School , during the middle/high school Moving Up...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Blind
  • Chromosomal Abnormalities
Tara's Triumph

Tara's Triumph

Teen's Fierce Determination for Independence Drives Assistive Technology Training
The will to fight was instilled in Tara ever since day one. Born a premature triplet at 26-weeks and weighing just under two-pounds, she required resuscitation in the delivery room and was put on a life-sustaining ventilator for weeks while undergoing numerous surgeries and medical procedures to...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Extreme Prematurity
  • Cerebral Palsy (CP)
  • spastic quadriplegia
Brave Bentley

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community
Bentley is more than meets the eye. He’s more than the power wheelchair that keeps him moving. He’s more than the ventilator that keeps him alive. He’s more than the assistive technology that helps him communicate. “He is the bravest kid in the world and an inspiration for...

Tags:

  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Assistive Technology
  • Specialized Feeding
  • Complex Post-Surgical Rehabilitation
  • nemaline myopathy
  • Scoliosis
  • Chronic Respiratory Failure
Omouri's Odyssey

Omouri's Odyssey

Assistive Technology Aids Tot with Spinal Muscular Atrophy
An infectious smile and big, brown eyes. These are just a few things you notice about Omouri when you first meet him. The two-and-a-half-year-old is unable to talk, but can speak volumes with just a look or a grin. “He’s full of energy and wants to express himself, but is unable to do...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Spinal Muscular Atrophy
Independent Amanda

Independent Amanda

Teen Triumphs at Blythedale with Technology, Tenderness and Time
Graduation is a time to reflect on past achievements while looking ahead to new beginnings. For one special 12th grader at the Mt. Pleasant-Blythedale School, located on the grounds of Blythedale Children’s Hospital, her future is paved with potential. “I will be moving to a new house...

Tags:

  • Assistive Technology
  • Complex Chronic Conditions
  • Otopalatodigital Spectrum Disorder
  • Cochlear Implant
  • Scoliosis
  • Diabetes
  • Blind
  • Deaf
Hope for Hiroshy

Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil
From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)
Thriving Theo

Thriving Theo

Driven Teen Excels in Recovery from Stroke
For the first fourteen years of his life, Theo was healthy and active. He spent time with his family, hung out with friends, played sports at summer camp and excelled in school. But in November 2016, everything changed. While at his home in Manhattan, the teen unexpectedly developed severe...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Stroke
  • Acquired Brain Injury
Noor

Paying a Visit to Sesame Street

If you ever find yourself singing "Can you tell me how to get, how to get to Sesame Street?" (the theme song to the popular children's show), just ask 10-year-old Noor. The Blythedale Day Hospital patient was recently invited to appear on the hit show, along with her father. She had...

Tags:

  • Assistive Technology
  • muscular dystrophy
nick at

Assistive Technology Keeps Nick on Top of his Game

17-year-old Nicholas has not let his diagnosed athetoid cerebral palsy and seizure disorder hold him back. The Ossining tenth-grader is an avid athlete who enjoys baseball, swimming and yoga; however, increased communication and academic demands began to pose a challenge for Nicholas. Almost a...

Tags:

  • Assistive Technology
  • Cerebral Palsy (CP)