Exuberant Emmy

Exuberant Emmy

Former Preemie Beats Guillain-Barre Syndrome with Therapies & Dance to Give Back
Six-year-old Emmy is a happy, vibrant little girl who easily sports a smile while breaking out any number of dance moves, like the “Floss” or “Dab”. A remarkable achievement for a budding performer who made her debut six weeks earlier then expected. “Emmy and her twin...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Guillan-Barre/AIDP
  • pain management
  • preemie

Talented Trejah

Dancer Dazzles with Emotional Encore After Beating Brain Tumors, Stroke
“Since I was little, dancing was everything to me.” The spotlight shined brightly on Trejah as a young, talented performer. Before even becoming a teenager, she had taken the stage numerous times in ballet and dance, even joining the famed Alvin Ailey American Dance Theater at Lincoln...

Tags:

  • Acquired Brain Injury
  • Juvenile Pilocytic Astrocytoma; seizure disorder; stroke; paralysis; cognitive impairments; brain tumor

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community
Bentley is more than meets the eye. He’s more than the power wheelchair that keeps him moving. He’s more than the ventilator that keeps him alive. He’s more than the assistive technology that helps him communicate. “He is the bravest kid in the world and an inspiration for...

Tags:

  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Assistive Technology
  • Specialized Feeding
  • Complex Post-Surgical Rehabilitation
  • nemaline myopathy
  • Scoliosis
  • Chronic Respiratory Failure

A Different Daniel

From Failure to Thrive to Specialized Feeding Program Pride
Slow and steady wins the race. A mantra that Blythedale Children’s Hospital patient, Daniel, his family and medical/clinical teams have lived by for the past few years. Since his birth four years ago, eating has been an obstacle for Daniel. He was initially breastfed, but had difficulty...

Tags:

  • Eosinophilic Esophagitis/EoE
  • Failure to Thrive/FTT
  • Food Allergies
  • Asthma
  • Autism
  • Feeding Delays
  • Speech Delays

Rocky's Big Game

Walking into a major league ballpark is often an impressive sight to see, but for one Blythedale Children’s Hospital patient and his family, attending a recent baseball game held even more meaning. Nine-year-old Rocky, a previously healthy and active child, suffered a stroke in July. He was...

Tags:

  • Acquired Brain Injury
  • Neuromuscular Disorders
  • Stroke

Daniella's New Dawn

Teen with Acquired Brain Injury Defies Diagnosis
Can a nosebleed save a life? For Daniella and her family, it did. Born full term and leading a healthy, active life for her first eleven years, the young girl rarely needed a doctor. In fifth grade, Daniella began developing frequent nose bleeds, fatigue and dizziness that gradually worsened until...

Tags:

  • Acquired Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Specialized Feeding
  • Acquired Brain Injury

Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil
From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)
A Journey of Hope

A Journey of Hope

Follow the extraordinary journeys of a few of Blythedale's smallest and most fragile infants, as their families prepare to bring them home... for the very first time.
"No family ever expects to be in this situation. You just don't think it will happen to you," said Jim McVeigh, Giavanna's father...

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Congenital heart disease
  • Micro Preemie
  • Extreme Prematurity
  • Acquired Brain Injury

Wondrous Wadeem

International Heart Transplant Patient's Journey Spans Continents for Cardiac & Pulmonary Care
How far would you go for the best medical care for your child? For five-year-old Wadeem and her family, the answer was half a world away. Diagnosed with complex congenital heart disease at birth, Wadeem underwent multiple cardiac reparative surgeries in her home country of Saudi Arabia and, later,...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Congenital heart disease
  • Chronic Lung Disease

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