Child using an AAC reading device

Merry Meredith

Assistive Technology and Rehabilitation Engineering Create Opportunities for Children with Disabilities.
Meredith, a five-year-old with a rare form of epilepsy, doesn't let her diagnosis stand in the way of her happiness. "She's a very personable, smiling, energetic little girl that wants to interact with her world," said JeanMarie Florkowski, O.T.R, A.T.P., an occupational therapist...

Tags:

  • Assistive Technology
  • Severe Epilepsy
River, Ana, Diana and Bear at home

River's Road Home

Respiratory Therapy and Parent Training Pave the Path from Hospital to Home.
Ana Rivera found out she was pregnant on Halloween in 2020. She and her partner, Diana Vasquez, started preparing for the next chapter in their lives and their new arrival. However, on April 8, 2021, at just 26 weeks’ gestation, River Omari Rivera was born weighing a mere 2 lbs., 2 oz. and...

Tags:

  • Pulmonary Rehabilitation
  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
Max in hallway

Stepping Stones Home

Max's Story
Meet Max, an aspiring content creator who - at age 12 - is taking on the world while recovering from congenital heart disease and an hypoxic brain injury. Max attends the Robert Stone Day Hospital at Blythedale Children’s Hospital which offers a specialized program for children who are able...

Tags:

  • Acquired Brain Injury
  • Cardiac Rehabilitation
  • hypoxic brain injury
video image

The Magic of Health Home

When asked about who Noah is, his mom, Katy, replied, “Noah is an amazing little boy. Well, I shouldn’t say little boy anymore because he’s 15, but to me he’s always going to be my little boy.” Noah was born prematurely at just 24-weeks’ gestation and was...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Cerebral Palsy (CP)
basketball video

Charlie's Comeback

Comprehensive rehabilitation at Blythedale Children’s Hospital gets Charlie back in the game.
On Valentine’s Day in 2020, 14-year-old Charlie was playing basketball with his friends when he suddenly felt tingling in his hands and fingers. He tried to call his parents, but his hands went numb, and he dropped his phone. “At that point I was completely paralyzed,” recalled...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Transverse Myelitis
mother and baby cuddling

With Feeding Tube and Innovative Parent Education Program, AJ Thrives

For More than 60 Medically Fragile Infants and Children at Blythedale, Feeding Tubes Provide Essential, Life-Saving Nutrition
Eight-month-old AJ was born with both Down syndrome and Tetralogy of Fallot, a rare condition caused by a combination of four heart defects. Shortly after his birth, AJ required major surgery to improve blood flow to his heart. His complex condition necessitated both a tracheostomy (a surgically...

Tags:

  • Specialized Feeding
  • Post Acute Neonatal Care
  • Downs Syndrome
Cody and his speech and physical therapists

Cody's Christmas

Cody made his way home just in time for the holidays and for his family's first Christmas as a family of five.
Cody and his sisters, Mackenzie and Abigail, were born prematurely at 27 weeks at Westchester Medical Center. Cody was in distress as a result of intrauterine growth restriction (IUGR) and was born with chronic lung disease typical of premature birth and required CPAP ventilation. He weighed a mere...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Intra Uterine Growth Restriction/IUGR
Leo on the go

Leo's Lasting Impression

Through the dedication of his parents, the staff at Blythedale, and the fight within Leo, he made it home, but not before leaving a lasting impression on all who met him.
Leo was admitted to Blythedale when he was 18-months old after being born with giant omphalocele, a rare birth defect in which the internal organs develop in a sack outside the abdominal wall. Leo required complex medical care for his complicated condition and intensive physical, occupational,...

Tags:

  • Complex Chronic Conditions
  • Assistive Technology
  • Giant Omphalocele
The Blythedale Four

The Blythedale Four

Proving Preemie Power Prevails
Despite their differences, four former preemies share a remarkable common bond at Blythedale Children's Hospital. Meet "The Blythedale Four" and learn about the threads that tie their lives together at New York's only post acute neonatal care rehabilitation center.

Tags:

  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
  • Chronic Lung Disease
  • Extreme Prematurity

Knowledgeable Naphtaly

Health Home Helps Teach Patient Transitions, Responsibility
Naphtaly knows Blythedale. His lengthy and complex medical journey led him to Blythedale over the course of 12 years as an inpatient, a Day Hospital patient, an outpatient, and most recently, an enrollee in the Hospital’s Health Home Care Management Program . Nineteen-year-old Naphtaly, with...

Tags:

  • Neuromuscular Disorders
  • Complex Post-Surgical Rehabilitation
  • centronuclear myopathy
  • neuromuscular scoliosis

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