Making Music Matter

Making Music Matter

Therapy Program Promotes Hope, Self-Expression & Socialization
“Every human being has an inherent musical ability. We all have a heartbeat and a heartbeat is a rhythm.” It’s this sense of hope at Blythedale Children’s Hospital that has kept the beat going strong for the music therapy program . But, what exactly is music therapy? It...

Tags:

  • Acquired Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Post Acute Neonatal Care
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Traumatic Brain Injury/TBI
  • Cerebral Palsy (CP)
  • Acquired Brain Injury
Navigating Nathaniel's Needs

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education
Nathaniel is like any other eight-year-old. He loves to watch cartoons, joke around and play on his iPad. The only difference is that Nathaniel not only uses this high-tech device for fun, but also to communicate and explore his world. When Nathaniel was born, his doting parents brought him home to...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Cerebral Palsy (CP)
  • spastic quadriplegia
  • hypotonia
  • Seizure Disorders
  • extreme spasticity
Exuberant Emmy

Exuberant Emmy

Former Preemie Beats Guillain-Barre Syndrome with Therapies & Dance to Give Back
Six-year-old Emmy is a happy, vibrant little girl who easily sports a smile while breaking out any number of dance moves, like the “Floss” or “Dab”. A remarkable achievement for a budding performer who made her debut six weeks earlier then expected. “Emmy and her twin...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Guillan-Barre/AIDP
  • pain management
  • preemie
A Doll Like Mimi

A Doll Like Mimi

Young Amputee Receives Cross Country Gift of Hope
Seven-year-old Mimi, a Day Hospital patient at Blythedale Children’s Hospital, was surprised with a special birthday present from halfway across the country earlier this month. Mimi received “ A Doll Like Me ” (she now lovingly calls “Precious”), donated by nine-year-...

Tags:

  • Complex Wound and Burn Management
  • Complex Post-Surgical Rehabilitation
  • multi-organ failure
  • septic shock
  • necrotizing fasciitis
  • amputation
Big Academic, Rehabilitative Dreams Ahead

Big Academic, Rehabilitative Dreams Ahead

Mt. Pleasant Blythedale School Holds Moving Up Ceremonies
“We want what every other kid wants, each and every day; to go to school, learn, study, make choices, make mistakes and then move on to the next grade.” Powerful words of inclusion from Zoriah, an 11th grader at Mt. Pleasant Blythedale School , during the middle/high school Moving Up...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Blind
  • Chromosomal Abnormalities
Dancing David

Dancing David

Conquering Cerebral Palsy with Physiatry, Physical Therapy and K-Pop
“He’s a firecracker that walks to the beat of his own drum.” Akua Genfi speaks with pride about her confident and charismatic nine-year-old son, David, who is always excited to meet new people, say “hello” and spark up a conversation. For almost half his young life,...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Cerebral Palsy (CP); obstructive congenital hydrocephalus; endoscopic third ventriculostomy; spasticity; botox injections; dorsal rhizotomy;
Talented Trejah

Talented Trejah

Dancer Dazzles with Emotional Encore After Beating Brain Tumors, Stroke
“Since I was little, dancing was everything to me.” The spotlight shined brightly on Trejah as a young, talented performer. Before even becoming a teenager, she had taken the stage numerous times in ballet and dance, even joining the famed Alvin Ailey American Dance Theater at Lincoln...

Tags:

  • Acquired Brain Injury
  • Juvenile Pilocytic Astrocytoma; seizure disorder; stroke; paralysis; cognitive impairments; brain tumor
Tara's Triumph

Tara's Triumph

Teen's Fierce Determination for Independence Drives Assistive Technology Training
The will to fight was instilled in Tara ever since day one. Born a premature triplet at 26-weeks and weighing just under two-pounds, she required resuscitation in the delivery room and was put on a life-sustaining ventilator for weeks while undergoing numerous surgeries and medical procedures to...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Extreme Prematurity
  • Cerebral Palsy (CP)
  • spastic quadriplegia
A Different Daniel

A Different Daniel

From Failure to Thrive to Specialized Feeding Program Pride
Slow and steady wins the race. A mantra that Blythedale Children’s Hospital patient, Daniel, his family and medical/clinical teams have lived by for the past few years. Since his birth four years ago, eating has been an obstacle for Daniel. He was initially breastfed, but had difficulty...

Tags:

  • Eosinophilic Esophagitis/EoE
  • Failure to Thrive/FTT
  • Food Allergies
  • Asthma
  • Autism
  • Feeding Delays
  • Speech Delays
Rocky's Big Game

Rocky's Big Game

Walking into a major league ballpark is often an impressive sight to see, but for one Blythedale Children’s Hospital patient and his family, attending a recent baseball game held even more meaning. Nine-year-old Rocky, a previously healthy and active child, suffered a stroke in July. He was...

Tags:

  • Acquired Brain Injury
  • Neuromuscular Disorders
  • Stroke

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