Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Making Music Matter

Therapy Program Promotes Hope, Self-Expression & Socialization

“Every human being has an inherent musical ability. We all have a heartbeat and a heartbeat is a rhythm.” It’s this sense of hope at Blythedale Children’s Hospital that has kept the beat going strong for the music therapy program. But, what exactly is music therapy? It’s much more than playing an...

Tags:

  • Acquired and Traumatic Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Post Acute Neonatal Care
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Traumatic Brain Injury (TBI)

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education

Nathaniel is like any other eight-year-old. He loves to watch cartoons, joke around and play on his iPad. The only difference is that Nathaniel not only uses this high-tech device for fun, but also to communicate and explore his world. When Nathaniel was born, his doting parents brought him home to...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Cerebral Palsy (CP)
  • Spastic Quadriplegia
  • Hypotonia
  • Seizure Disorders
  • Extreme Spasticity

In the Blink of an Eye

Battling Back from Brain Injury

"In the Blink of an Eye" is the inspiring story of two children at Blythedale Children's Hospital and their complex road to recovery following devastating brain injuries. Watch Xiomara and Easton as they navigate an unexpected future with the help of their medical team, family and friends. See the...

Tags:

  • Acquired and Traumatic Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Assistive Technology
  • Traumatic Brain Injury (TBI)
  • Arteriovenous Malformation (AVM)
  • Stroke

Exuberant Emmy

Former Preemie Beats Guillain-Barre Syndrome with Therapies & Dance to Give Back

Six-year-old Emmy is a happy, vibrant little girl who easily sports a smile while breaking out any number of dance moves, like the “Floss” or “Dab”. A remarkable achievement for a budding performer who made her debut six weeks earlier then expected. “Emmy and her twin brother were both born...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Guillain-Barre Syndrome (GBS)
  • Pain Management
  • Preemie

Helping Hands

Children Gain Strength and Function in Summer Upper Extremity Program

For most children, summertime means no school, no classes and no teachers. But, for a small group of motivated youngsters at Blythedale Children’s Hospital, summer means something more. It means heading indoors, slipping on a special blue mitt and working hard to achieve new therapeutic goals. It...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Hemiparesis

A Doll Like Mimi

Young Amputee Receives Cross Country Gift of Hope

Seven-year-old Mimi, a Day Hospital patient at Blythedale Children’s Hospital, was surprised with a special birthday present from halfway across the country earlier this month. Mimi received “A Doll Like Me” (she now lovingly calls “Precious”), donated by nine-year-old Rylan from Wisconsin as part...

Tags:

  • Complex Wound and Burn Management
  • Complex Post-Surgical Rehabilitation
  • Multi-Organ Failure
  • Septic Shock
  • Necrotizing Fascitis
  • Amputation

Big Academic, Rehabilitative Dreams Ahead

Mt. Pleasant Blythedale School Holds Moving Up Ceremonies

“We want what every other kid wants, each and every day; to go to school, learn, study, make choices, make mistakes and then move on to the next grade.” Powerful words of inclusion from Zoriah, an 11th grader at Mt. Pleasant Blythedale School, during the middle/high school Moving Up Ceremony in June...

Tags:

  • Acquired and Traumatic Brain Injury
  • Assistive Technology
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Cerebral Palsy (CP)
  • Acquired Brain Injury
  • Blindness
  • Chromosomal Abnormalities

Resilient Raymond

Micro-Preemie Masters Movement as Inpatient and Outpatient

Raymond has got some serious moves. The 14-month-old can roll over, push himself up to a sitting position and even use both hands to play with toys. Some pretty impressive skills considering what he had to overcome. In January 2018, an unexpected pre-term delivery brought him into the world at just...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Micro Preemie
  • Congenital Heart Disease
  • Patent Ductus Arteriosus (PDA)
  • Bronchopulmonary Dysplasia (BPD)
  • Chronic Lung Disease
  • Supraventricular Tachycardia (SVT)
  • Hypothyroidism

Dancing David

Conquering Cerebral Palsy with Physiatry, Physical Therapy and K-Pop

“He’s a firecracker that walks to the beat of his own drum.” Akua Genfi speaks with pride about her confident and charismatic nine-year-old son, David, who is always excited to meet new people, say “hello” and spark up a conversation. For almost half his young life, David has been part of the...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Cerebral Palsy (CP)
  • Obstructive Congenital Hydrocephalus
  • Endoscopic Third Ventriculostomy
  • Spasticity
  • Dorsal Rhizotomy