Translating Hope & Health: Breaking Language Barriers

Translating Hope & Health: Breaking Language Barriers

Traducción Española Elder has a big heart and loves many things—namely his family, friends, the Incredible Hulk and the New York Yankees. You can usually find the eight-year-old in his inpatient room cracking jokes and laughing during therapy sessions, or donning a Yankees tee shirt while...

Tags:

  • Acquired Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Acquired Brain Injury
  • hydrocephalus
  • brain hemorrhage
  • cardiac arrest
  • paralysis
  • brain tumor
Joyful Jackson

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters
Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia/BPD
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • hydrocephalus
Navigating Nathaniel's Needs

Navigating Nathaniel's Needs

Assistive Technology Empowers Exploration & Education
Nathaniel is like any other eight-year-old. He loves to watch cartoons, joke around and play on his iPad. The only difference is that Nathaniel not only uses this high-tech device for fun, but also to communicate and explore his world. When Nathaniel was born, his doting parents brought him home to...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Cerebral Palsy (CP)
  • spastic quadriplegia
  • hypotonia
  • Seizure Disorders
  • extreme spasticity
Exuberant Emmy

Exuberant Emmy

Former Preemie Beats Guillain-Barre Syndrome with Therapies & Dance to Give Back
Six-year-old Emmy is a happy, vibrant little girl who easily sports a smile while breaking out any number of dance moves, like the “Floss” or “Dab”. A remarkable achievement for a budding performer who made her debut six weeks earlier then expected. “Emmy and her twin...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Guillan-Barre/AIDP
  • pain management
  • preemie
A Doll Like Mimi

A Doll Like Mimi

Young Amputee Receives Cross Country Gift of Hope
Seven-year-old Mimi, a Day Hospital patient at Blythedale Children’s Hospital, was surprised with a special birthday present from halfway across the country earlier this month. Mimi received “ A Doll Like Me ” (she now lovingly calls “Precious”), donated by nine-year-...

Tags:

  • Complex Wound and Burn Management
  • Complex Post-Surgical Rehabilitation
  • multi-organ failure
  • septic shock
  • necrotizing fasciitis
  • amputation
Big Academic, Rehabilitative Dreams Ahead

Big Academic, Rehabilitative Dreams Ahead

Mt. Pleasant Blythedale School Holds Moving Up Ceremonies
“We want what every other kid wants, each and every day; to go to school, learn, study, make choices, make mistakes and then move on to the next grade.” Powerful words of inclusion from Zoriah, an 11th grader at Mt. Pleasant Blythedale School , during the middle/high school Moving Up...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Blind
  • Chromosomal Abnormalities
Resilient Raymond

Resilient Raymond

Micro-Preemie Masters Movement as Inpatient and Outpatient
Raymond has got some serious moves. The 14-month-old can roll over, push himself up to a sitting position and even use both hands to play with toys. Some pretty impressive skills considering what he had to overcome. In January 2018, an unexpected pre-term delivery brought him into the world at just...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Micro Preemie
  • Congenital heart disease
  • PDA
  • Bronchopulmonary Dysplasia/BPD
  • Chronic Lung Disease
  • SVT
  • hypothyroidism
Dancing David

Dancing David

Conquering Cerebral Palsy with Physiatry, Physical Therapy and K-Pop
“He’s a firecracker that walks to the beat of his own drum.” Akua Genfi speaks with pride about her confident and charismatic nine-year-old son, David, who is always excited to meet new people, say “hello” and spark up a conversation. For almost half his young life,...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Cerebral Palsy (CP); obstructive congenital hydrocephalus; endoscopic third ventriculostomy; spasticity; botox injections; dorsal rhizotomy;
Talented Trejah

Talented Trejah

Dancer Dazzles with Emotional Encore After Beating Brain Tumors, Stroke
“Since I was little, dancing was everything to me.” The spotlight shined brightly on Trejah as a young, talented performer. Before even becoming a teenager, she had taken the stage numerous times in ballet and dance, even joining the famed Alvin Ailey American Dance Theater at Lincoln...

Tags:

  • Acquired Brain Injury
  • Juvenile Pilocytic Astrocytoma; seizure disorder; stroke; paralysis; cognitive impairments; brain tumor
Tara's Triumph

Tara's Triumph

Teen's Fierce Determination for Independence Drives Assistive Technology Training
The will to fight was instilled in Tara ever since day one. Born a premature triplet at 26-weeks and weighing just under two-pounds, she required resuscitation in the delivery room and was put on a life-sustaining ventilator for weeks while undergoing numerous surgeries and medical procedures to...

Tags:

  • Assistive Technology
  • Complex Post-Surgical Rehabilitation
  • Neuromuscular Disorders
  • Extreme Prematurity
  • Cerebral Palsy (CP)
  • spastic quadriplegia

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