Mother looking at child

Maria's Village

Care at The Steven and Alexandra Cohen Pediatric Long Term Care Pavilion Creates a Happy Ending.
Maria is a six-year-old girl whose family has long awaited her arrival home and it's taken a village to get her there. Maria was born with arthrogryposis, a rare and complex congenital condition that affects the joints in her upper and lower limbs causing stiffness and limiting her range of...

Tags:

  • Complex Chronic Conditions
Therapeutic Recreation Triumphs

Therapeutic Recreation: Healing Through Play

Sitting in a hospital bed or wheelchair, surrounded by beeping machines and new faces can be a bit jarring for both patient and parent. However, a special team at Blythedale Children’s Hospital has the unique responsibility of turning frowns upside down. They are the finders of fun. The...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Acquired Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • ALL
Making Music Matter

Making Music Matter

Therapy Program Promotes Hope, Self-Expression & Socialization
“Every human being has an inherent musical ability. We all have a heartbeat and a heartbeat is a rhythm.” It’s this sense of hope at Blythedale Children’s Hospital that has kept the beat going strong for the music therapy program . But, what exactly is music therapy? It...

Tags:

  • Acquired Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Post Acute Neonatal Care
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Traumatic Brain Injury/TBI
  • Cerebral Palsy (CP)
  • Acquired Brain Injury
Big Academic, Rehabilitative Dreams Ahead

Big Academic, Rehabilitative Dreams Ahead

Mt. Pleasant Blythedale School Holds Moving Up Ceremonies
“We want what every other kid wants, each and every day; to go to school, learn, study, make choices, make mistakes and then move on to the next grade.” Powerful words of inclusion from Zoriah, an 11th grader at Mt. Pleasant Blythedale School , during the middle/high school Moving Up...

Tags:

  • Acquired Brain Injury
  • Assistive Technology
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Acquired Brain Injury
  • Cerebral Palsy (CP)
  • Blind
  • Chromosomal Abnormalities
Brave Bentley

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community
Bentley is more than meets the eye. He’s more than the power wheelchair that keeps him moving. He’s more than the ventilator that keeps him alive. He’s more than the assistive technology that helps him communicate. “He is the bravest kid in the world and an inspiration for...

Tags:

  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Assistive Technology
  • Specialized Feeding
  • Complex Post-Surgical Rehabilitation
  • nemaline myopathy
  • Scoliosis
  • Chronic Respiratory Failure
Omouri's Odyssey

Omouri's Odyssey

Assistive Technology Aids Tot with Spinal Muscular Atrophy
An infectious smile and big, brown eyes. These are just a few things you notice about Omouri when you first meet him. The two-and-a-half-year-old is unable to talk, but can speak volumes with just a look or a grin. “He’s full of energy and wants to express himself, but is unable to do...

Tags:

  • Assistive Technology
  • Neuromuscular Disorders
  • Spinal Muscular Atrophy
Hope for Hiroshy

Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil
From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)