Bringing your child home is no small feat when they're medically fragile. No family ever thinks they will be in the position of caring for a child with complex medical needs, but Blythedale’s innovative Parent and Family Education Program divides what initially seems like an overwhelming...
Four-month-old Charlie was born with Ryanodine Receptor 1 Related (RYR-1) Myopathy, a rare genetic disorder that disrupts the flow of calcium in muscle cells, limiting the muscle's ability to contract. Diagnosed with low muscle tone at birth, Charlie was transferred from the NICU to Blythedale...
Ocean and Rio were born at just 23-weeks gestation and, as a result of their extreme prematurity, developed chronic lung disease. The twins had other complications, including a mass in Rio's airway that blocked his ability to speak or swallow, and Ocean had a perforated intestine that would...
