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  1. Home
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  4. Addiena's Story

Addiena's Story

Services & Support

  • Departments & Services
  • Stories & Outcomes

Watch Addiena's story and learn more about her journey - overcoming complications of prematurity - to go home with her adoring parents.

Treatment:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation

Condition:

  • Extreme Prematurity
  • Micro Preemie
  • Chronic Lung Disease

Story Category:

  • medical
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Additional Stories

Parents and child

Going Home

Bringing your child home is no small feat when they're medically fragile. No family ever thinks they will be in the position of caring for a child with complex medical needs, but Blythedale’s innovative Parent and Family Education Program divides what initially seems like an overwhelming...
Photo of baby and occupational therapist

From RYR-1 Diagnosis To Home: Baby Charlie's Journey

Four-month-old Charlie was born with Ryanodine Receptor 1 Related (RYR-1) Myopathy, a rare genetic disorder that disrupts the flow of calcium in muscle cells, limiting the muscle's ability to contract. Diagnosed with low muscle tone at birth, Charlie was transferred from the NICU to Blythedale...

Ocean and Rio Get a Taste of the Good Life

Ocean and Rio were born at just 23-weeks gestation and, as a result of their extreme prematurity, developed chronic lung disease. The twins had other complications, including a mass in Rio's airway that blocked his ability to speak or swallow, and Ocean had a perforated intestine that would...
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Blythedale is New York State’s only independent, specialty children’s hospital.
95 Bradhurst Avenue, Valhalla, NY 10595
(914) 592-7555

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