Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Going Home

Bringing your child home is no small feat when they're medically fragile, but with Blythedale's Parent and Family Education Program it's possible.

Bringing your child home is no small feat when they're medically fragile. No family ever thinks they will be in the position of caring for a child with complex medical needs, but Blythedale’s innovative Parent and Family Education Program divides what initially seems like an overwhelming learning...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Extreme Prematurity
  • Micro Preemie
  • Preemie
  • Retinopathy of Prematurity (RoP)
  • Chronic Lung Disease

Ocean and Rio Get a Taste of the Good Life

Premature twins thrive thanks to ventilator weaning and feeding therapy.

Ocean and Rio were born at just 23-weeks gestation and, as a result of their extreme prematurity, developed chronic lung disease. The twins had other complications, including a mass in Rio's airway that blocked his ability to speak or swallow, and Ocean had a perforated intestine that would require...

Tags:

  • Specialized Feeding
  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Feeding Disorders
  • Transition to Oral Feeding from NG, GT, or G/J
  • Chronic Lung Disease

River's Road Home

Respiratory Therapy and Parent Training Pave the Path from Hospital to Home.

Ana Rivera found out she was pregnant on Halloween in 2020. She and her partner, Diana Vasquez, started preparing for the next chapter in their lives and their new arrival. However, on April 8, 2021, at just 26 weeks’ gestation, River Omari Rivera was born weighing a mere 2 lbs., 2 oz. and was just...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Chronic Lung Disease
  • Micro Preemie

The Blythedale Four

Proving Preemie Power Prevails

Despite their differences, four former preemies share a remarkable common bond at Blythedale Children's Hospital. Meet "The Blythedale Four" and learn about the threads that tie their lives together at New York's only post acute neonatal care rehabilitation center.

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Chronic Lung Disease
  • Extreme Prematurity
  • Preemie

Ada's Adventure

Surviving Twin Preemie Weaned From Ventilator Dependency, Goes Home for First Time

As paramedics secured Ada in her car seat atop an ambulance stretcher, her mom, Laurena, stood inside their room at Blythedale Children’s Hospital and reviewed her checklist: 1) Ada’s oxygen levels 2) Ada’s tubing 3) Ada’s seatbelt 4) Ada’s “Discharge Day” outfit The bittersweet moment had finally...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Chronic Lung Disease
  • Bronchopulmonary Dysplasia (BPD)
  • Patent Ductus Arteriosus (PDA)

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters

Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was hospitalized for...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia (BPD)
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • Hydrocephalus
  • Preemie

Resilient Raymond

Micro-Preemie Masters Movement as Inpatient and Outpatient

Raymond has got some serious moves. The 14-month-old can roll over, push himself up to a sitting position and even use both hands to play with toys. Some pretty impressive skills considering what he had to overcome. In January 2018, an unexpected pre-term delivery brought him into the world at just...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Micro Preemie
  • Congenital Heart Disease
  • Patent Ductus Arteriosus (PDA)
  • Bronchopulmonary Dysplasia (BPD)
  • Chronic Lung Disease
  • Supraventricular Tachycardia (SVT)
  • Hypothyroidism

Wondrous Wadeem

International Heart Transplant Patient's Journey Spans Continents for Cardiac & Pulmonary Care

How far would you go for the best medical care for your child? For five-year-old Wadeem and her family, the answer was half a world away. Diagnosed with complex congenital heart disease at birth, Wadeem underwent multiple cardiac reparative surgeries in her home country of Saudi Arabia and, later...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Congenital Heart Disease
  • Chronic Lung Disease

Addiena's Story

Watch Addiena's story and learn more about her journey - overcoming complications of prematurity - to go home with her adoring parents.

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Extreme Prematurity
  • Micro Preemie
  • Chronic Lung Disease