Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Amazing Amar

Overcoming Bronchopulmonary Dysplasia

Amar was born at just 28-weeks gestation at Connecticut Children’s Hospital in April 2024, weighing just 1 pound, 2.6 ounces. He was diagnosed with severe bronchopulmonary dysplasia, also known as chronic lung disease of prematurity. At birth, he was intubated and required chest tubes to breathe....

Tags:

  • Complex Chronic Conditions
  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Bronchopulmonary Dysplasia (BPD)
  • Retinopathy of Prematurity (RoP)
  • Cardiac Arrest
  • Chronic Lung Disease

Laney's Fight

Laney McGowan was first diagnosed with Dravet Syndrome when she was four months old and had her first seizure. Laney received intensive physical, occupational, speech, and feeding therapies at Blythedale to help her regain her ability to use her left side

Six-year-old Laney McGowan was diagnosed with Dravet Syndrome when she was just four-months old and had her first seizure. Dravet Syndrome is a rare form of treatment-resistant epilepsy which causes prolonged seizures. In December, Laney struggled with several upper respiratory infections and...

Tags:

  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Acquired and Traumatic Brain Injury
  • Cardiac Rehabilitation
  • Dravet Syndrome
  • Acquired Brain Injury
  • Severe Epilepsy
  • Cardiac Arrest
  • Stroke

Stepping Stones Home

Max's Story

Meet Max, an aspiring content creator who - at age 12 - is taking on the world while recovering from congenital heart disease and an hypoxic brain injury. Max attends the Robert Stone Day Hospital at Blythedale Children’s Hospital which offers a specialized program for children who are able to live...

Tags:

  • Acquired and Traumatic Brain Injury
  • Cardiac Rehabilitation
  • Cardiac Arrest
  • Hypoxic Brain Injury
  • Stroke