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I Can Do This

Suddenly, a tiny human being depended on you for survival. At the beginning, you’d check his breathing day and night, worry if he was feeding enough, struggle to decipher what his crying meant. But gut instinct, the advice of family...

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  • Message from the CEO
  • Education
  • Training

Time is Running Out: Kids Need Your Help Right Now!

I just returned from Washington, where I was advocating on behalf of what was once one of the easiest and safest bets in Congress: to pass legislation reauthorizing the Children's Health Insurance Program (CHIP). This vital healthcare program was created...

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  • Message from the CEO

Taking our Message to the Hill

President and CEO Larry Levine headed to Washington D.C. last week to meet with legislators and their staffs from the House of Representatives and Senate. While there he discussed ways to potentially break the Congressional impasse impeding the re-authorization of...

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  • Message from the CEO

Pediatric Long Term Care... and Going Home

Throughout the country, infants and children share geriatric facilities, either in cribs or beds next to the elderly or in designated children’s areas; it makes little difference. Most spend passive, lonely days and nights attached to ventilators and feeding tubes...

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  • Message from the CEO

In the Blink of an Eye

Amanda's mother sits silently in the hospital waiting room, heart thumping, trying to slow her breathing, praying between breaths. Her Amanda, her sweet, playful seven-year-old daughter, has suffered a major fall, and is in surgery for a traumatic brain injury...

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  • Message from the CEO

Hear My Voice, Watch Me Move - Assistive Technology and Children

Some children live locked in silence. Though they have so much to say, they cannot speak. Some cannot move or control much of their bodies. Others face a grim future of gradual loss of speech or movement, or both. They...

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  • Message from the CEO
  • Assistive Technology

Medicaid and Our Children

Contrary to popular perception, many are in working families with low incomes. Others are primarily covered by primary insurance, but have serious chronic conditions that require ongoing therapies and specialized care that are not covered by private insurance. Reductions in...

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  • Message from the CEO