Stories & Outcomes

Discharge days are bittersweet at Blythedale Children's Hospital. While we miss the children we become so close to over the course of their treatment, our hearts soar when they are able to return to their families and their communities. We are proud to share some of their stories.

Brave Bentley

Health Home Helps Medically Complex Boy & Family Thrive in Community

Bentley is more than meets the eye. He’s more than the power wheelchair that keeps him moving. He’s more than the ventilator that keeps him alive. He’s more than the assistive technology that helps him communicate. “He is the bravest kid in the world and an inspiration for anybody,” says Marlenny...

Tags:

  • Neuromuscular Disorders
  • Complex Chronic Conditions
  • Pulmonary Rehabilitation
  • Assistive Technology
  • Specialized Feeding
  • Complex Post-Surgical Rehabilitation
  • Nemaline Myopathy
  • Neuromuscular Scoliosis
  • Chronic Respiratory Failure

Marvelous Mirela

Blythedale Patient Overcomes the Odds to Thrive in Pediatric Long Term Care

In June of 2016, then three-month-old Mirela was admitted to Blythedale’s Infant & Toddler Unit for medical management of her complex condition, and potentially for ventilator weaning. She was diagnosed with pulmonary hypertension and chronic respiratory failure, as well as congenital hypotonia, a...

Tags:

  • Pulmonary Hypertension
  • Chronic Respiratory Failure
  • Pulmonary Hypertension
  • Hypotonia