Joyful Jackson

Joyful Jackson

Ex-Preemie Prevails with Respiratory Resilience, Brotherly Bond & Family of Fighters
Sixteen-month-old Jackson is full of joy and it shows. He loves to laugh, smile and play with his twin brother, Connor. As rare dichorionic/diamniotic identical twins, the pregnancy was complicated and the twins were born extremely premature at just 25-weeks gestation. “My wife was...

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Pulmonary Hypertension
  • Specialized Feeding
  • Complex Chronic Conditions
  • Bronchopulmonary Dysplasia/BPD
  • Extreme Prematurity
  • Chronic Lung Disease
  • Pulmonary Hypertension
  • Feeding Disorders
  • hydrocephalus
Making Music Matter

Making Music Matter

Therapy Program Promotes Hope, Self-Expression & Socialization
“Every human being has an inherent musical ability. We all have a heartbeat and a heartbeat is a rhythm.” It’s this sense of hope at Blythedale Children’s Hospital that has kept the beat going strong for the music therapy program . But, what exactly is music therapy? It...

Tags:

  • Acquired Brain Injury
  • Cancer Rehabilitation
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Wound and Burn Management
  • Neuromuscular Disorders
  • Post Acute Neonatal Care
  • Pre/Post Organ & Stem Cell Transplant
  • Pulmonary Hypertension
  • Traumatic Brain Injury/TBI
  • Cerebral Palsy (CP)
  • Acquired Brain Injury
Resilient Raymond

Resilient Raymond

Micro-Preemie Masters Movement as Inpatient and Outpatient
Raymond has got some serious moves. The 14-month-old can roll over, push himself up to a sitting position and even use both hands to play with toys. Some pretty impressive skills considering what he had to overcome. In January 2018, an unexpected pre-term delivery brought him into the world at just...

Tags:

  • Post Acute Neonatal Care
  • Specialized Feeding
  • Pulmonary Rehabilitation
  • Micro Preemie
  • Congenital heart disease
  • PDA
  • Bronchopulmonary Dysplasia/BPD
  • Chronic Lung Disease
  • SVT
  • hypothyroidism
Hope for Hiroshy

Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil
From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)
A Journey of Hope

A Journey of Hope

Follow the extraordinary journeys of a few of Blythedale's smallest and most fragile infants, as their families prepare to bring them home... for the very first time.
"No family ever expects to be in this situation. You just don't think it will happen to you," said Jim McVeigh, Giavanna's father.

Tags:

  • Pulmonary Hypertension
  • Pulmonary Rehabilitation
  • Cardiac Rehabilitation
  • Post Acute Neonatal Care
  • Specialized Feeding
  • Congenital heart disease
  • Micro Preemie
  • Extreme Prematurity
  • Acquired Brain Injury
Raelynn

Raelynn's Road to Recovery

Bubble CPAP Offers Non-Invasive Ventilation Treatment for Preemie
Four-month-old Raelynn – born at just 24-weeks gestation - is heading home for the first time. It’s been a complicated journey for first-time mom, Raveen, but one that was made easier thanks to the support she and Raelynn received at Blythedale Children’s Hospital. During her 117-...

Tags:

  • Post Acute Neonatal Care
  • Bronchopulmonary Dysplasia/BPD
  • PDA
  • Extreme Prematurity

Blythedale Helps Zoey, and her Mom, Breathe a Little Easier

Zoey has a smile that lights up a room. The exuberant thirteen-month old was born via emergency caesarean section after she and her mother, Melanie, were involved in a car accident. Delivered at just 25-weeks gestation, Zoey - considered a "micro-preemie" - weighed a mere 1 lb., 7 oz...

Tags:

  • Post Acute Neonatal Care
  • Micro Preemie
  • Extreme Prematurity
  • Bronchopulmonary Dysplasia/BPD

Angel Has Emotional Ties

Rafeena Ali looks at her two-and-a-half-year-old daughter Angel Grant and still can’t believe what she sees: a little girl who’s babbling, zooming around the house, and copying everything she sees on Dora the Explorer. "You’d never know how tiny and sick she was,” says...

Tags:

  • Post Acute Neonatal Care
  • Extreme Prematurity
  • Micro Preemie
Addiena

Addiena's Story

Watch Addiena's story and learn more about her journey - overcoming complications of prematurity - to go home with her adoring parents.

Tags:

  • Post Acute Neonatal Care
  • Pulmonary Rehabilitation
  • Extreme Prematurity
  • Micro Preemie
  • Chronic Lung Disease
Kassius and Keaton's Journey Home

Kassius and Keaton's Journey Home

Twins Kassius and Keaton were born at just 30-weeks gestation. During the pregnancy, parents Krissy and Sam learned the boys were monochorionic/diamniotic identical twins, sharing a placenta, but not an amniotic sac. This put the boys at greater risk for significant complications. While Keaton...

Tags:

  • Post Acute Neonatal Care
  • Extreme Prematurity