Hope for Hiroshy

Former Preemie with Jejunal Atresia Grows Into Promising Pupil
From the start of his life, Hiroshy and hospitals have gone hand in hand. Born premature at 33-weeks’ gestation in October 2011, Hiroshy was diagnosed with jejunal atresia (an incomplete formation of part of the small intestine), and spent 90 days in the NICU. The newborn underwent numerous...

Tags:

  • Complex Chronic Conditions
  • Specialized Feeding
  • Pre/Post Organ & Stem Cell Transplant
  • Post Acute Neonatal Care
  • Assistive Technology
  • Extreme Prematurity
  • Short Gut Syndrome
  • Total Parenteral Nutrition (TPN)

Malka on the Mend

LVAD Dependent, Pre-Transplant Patient Returns After Cardiac Surgery
“I’ve never had a child, who’s had a major organ transplant, come back so quickly.” Dr. Mary Didie, Unit Chief of the Day Hospital Program at Blythedale Children’s Hospital, proudly uttered those words upon the return of nine-year-old Malka in March 2018, less than...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • LVAD
  • Heart Transplant
  • Stroke

Wondrous Wadeem

International Heart Transplant Patient's Journey Spans Continents for Cardiac & Pulmonary Care
How far would you go for the best medical care for your child? For five-year-old Wadeem and her family, the answer was half a world away. Diagnosed with complex congenital heart disease at birth, Wadeem underwent multiple cardiac reparative surgeries in her home country of Saudi Arabia and, later,...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Cardiac Rehabilitation
  • Complex Post-Surgical Rehabilitation
  • Complex Chronic Conditions
  • Congenital heart disease
  • Chronic Lung Disease

Malka on the Move

When eight-year-old Malka arrived at Blythedale last October, she was a trailblazer in her own right. Malka was born with dilated cardiomyopathy, a condition in which the heart's ability to pump blood is decreased because the heart's left ventricle is enlarged and weakened. Despite her...

Tags:

  • Cardiac Rehabilitation
  • Pre/Post Organ & Stem Cell Transplant
  • LVAD
Rebecca

A Fighter With Heart

Rebecca's Brave Recovery from Heart Transplant
Rebecca has always been a fighter, even before birth. The 12-year-old was diagnosed in utero with hypoplastic left heart syndrome, a congenital heart defect. Throughout her life, Rebecca has endured a variety of procedures related to her diagnosis, but none prevented her from enjoying her...

Tags:

  • Pre/Post Organ & Stem Cell Transplant
  • Acquired Brain Injury
  • Complex Post-Surgical Rehabilitation
  • Heart Transplant
  • Congenital heart disease
  • Acquired Brain Injury