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Programs & Services

Neuromuscular and Genetic Disorders


Blythedale has a long tradition of providing comprehensive medical care to children with neuromuscular disorders, including muscular dystrophy and other myopathies, neuropathies, motor neuron diseases and neuromuscular junction disorders, as well as complex genetic disorders. Widely recognized as a national leader in treating children with rare conditions, Blythedale is a center of clinical excellence, innovation and compassionate care. Our interdisciplinary team includes distinguished experts in neurology, physical medicine and rehabilitation, orthopaedics, psychiatry/psychology, pulmonology, genetics, and other medical specialties. Blythedale also has the largest and most experienced pediatric therapy department in New York State. The goal is to help our patients maximize their functional abilities through comprehensive medical care and rehabilitation, utilizing state-of-the-art technology, environmental modifications and adaptive equipment.
Following the intake evaluation, the child’s clinical team will work collaboratively to identify developmentally important goals to improve mobility, foster independence in daily activities and self-care, and address the highly specific medical needs of children with rare and complex conditions. Coordinated discharge planning provides families with detailed information regarding follow-up care, equipment needs, and support services. Well-known for superior outcomes and the ability to help patients achieve their maximum potential, Blythedale aims to help all of our young patients return to their families, schools and communities.
 
  • Board-certified pediatricians 24/7, including full-time medical specialists in pediatric neurology, physical medicine and rehabilitation, and psychiatry.
  • Experienced nursing staff (75% R.N., and more than 85% on the Infant and Toddler Unit) with training in monitoring of skin and nutritional needs, spasticity, and pain management.
  • Largest hospital-based pediatric therapy department in New York State, with 85 full-time pediatric therapists (physical, occupational, speech pathology, and feeding).
  • 24/7 pulmonary and respiratory support (20 full-time pediatric respiratory therapists).
  • Family Resource Center provides parents and caregivers opportunities to access computers and resource materials on support services for children with rare disorders.
  • On-site therapy pool for aquatic therapy sessions to improve range of motion, coordination, strengthening and conditioning.
  • Adaptive equipment clinic on-site, for transition from stretcher to adaptive wheelchair that accommodates ventilator and/or assistive technology, and specially trained seating and mobility specialists.
  • State-of-the-art medical technology and monitoring equipment, including pressure mapping, environmental control units (ECUs), gait analysis, and partial body weight support system to improve gait.
  • Child Life specialists, trained in helping patients cope with medical issues which are typically seen in degenerative illnesses.
  • On-site Prosthetic/Orthotic Clinic offers comprehensive evaluation and prescription for a broad variety of devices.
  • School programming at the Mt. Pleasant Blythedale UFSD, the Hospital’s on-site K-12 public school district, to facilitate continued education during rehabilitation.
  • Unique Day Hospital program for patients who need intensive rehabilitation and/or medical care.

On-Site Services and Support Areas:

  • Pediatric Medicine
  • Pediatric Rehabilitation Medicine
  • Child Neurology
  • Child Psychiatry and Psychology
  • Pediatric Orthopaedics
  • Pediatric Pulmonology
  • Pediatric Genetics
  • Pain Management
  • Pediatric Nursing
  • Pediatric Physical, Occupational, and Respiratory Therapy
  • Speech Pathology, and Feeding Therapy  

    Additional Specialty Support Areas Available:

    • Pediatric Otorhinolaryngology (ENT)
    • Pediatric Cardiology
    • Additional consultative specialists as needed
Clinical Support Services
  • Audiology
  • Social Work/Case Management
  • On-site Equipment Clinic
  • Assistive Technology
  • Child Life
  • Radiology
  • Patient Advocacy
  • Lab Services

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Patient Stories
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Last summer, 13-year-old Mathew was well-known as a baseball prodigy in the Little League
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